skip to Main Content

Provide input to Canada's Drug Agency (CDA-AMC)

Canada's Drug Agency wants to hear from people impacted by dementia to assist them in making decisions around the public funding of Leqembi (lecanemab)

 

Dementia Network Calgary is providing the opportunity for people with lived experience (as caregivers or people with a diagnosis of Mild Cognitive Impairment or dementia) to provide feedback to the Canada Drug Agency (CDA-AMC) on a new treatment named Leqembi (lecanemab).

The feedback from this survey will be summarized and submitted anonymously to Canada’s Drug Agency to ensure that the voice of people with lived experience is considered when evaluating the value and public funding of this treatment as well as recommendations for its use.  For more information about the CDA-AMC, click HERE.

In order to make recommendations about Leqembi (lecanemab), the CDA is seeking information:

  • to better understand the nature of cognitive impairment
  • to identify health outcomes that are important to patients and caregivers. This understanding about what outcomes really matter to those living with the disease helps the CDA-AMC confirm outcomes measured in the clinical trial and economic model. Examples of outcomes include symptom improvement, slowing symptom worsening, avoiding future illness, improving quality of life, avoidance of treatment-related side effects, ease of use.
  • to understand the diversity of needs among patients and health care settings across Canada and highlight needs that are specific to certain communities or subpopulations
  • to identify potential issues around patients’ abilities to use and access the drug under review

The survey is completely voluntary and will take between 5 and 20 minutes to complete.

Thank you for taking the time to share your experience and feel free to share this survey with people who have been impacted by dementia: https://www.surveymonkey.com/r/9KTV7BT

The survey will close on June 2nd.

Did you know? FOUR vulnerable older adults are reported missing every week in Calgary. Watch the video to learn how you can help.

Conversation Cafe’s

Conversation Cafes have been found to be an invaluable resource for members of our community, including those with dementia, care partners.  Click the Calendar of Events to find a time that works for you. For those not familiar with a Conversation Cafe:

  • the purpose of conversation cafe is to bring people together for conversation, for information available through various networks, to share experiences, and to exchange information
  • all conversation cafes have a host and often a co-host to facilitate conversation
  • we are a safe place for discussion, laughs and friendship
  • we firmly believe in confidentiality
  • café members often feel connected to others on the same or similar journey